RARE Webinar: Thyroid Eye Disease Awareness and Education
Learn valuable information about thyroid eye disease and treatment options in this webinar. Designed for patients and their families, the panel of experts will empower you with knowledge and help you create a community of support and hope. [Download Slides][1] [1]: https://globalgenes.org/wp-content/uploads/2019/…
Genetic Testing: Getting To a Diagnosis
Technology has advanced tremendously over the last decade. The costs of tests are decreasing. Genetic testing is on the rise, but it is still unfamiliar territory for most patients and caregivers and even many physicians. We wrote this guide to help you understand your options and make good decisions. Only you can d…
Chasing Cures: The Power of Patients
For many rare diseases, the existing research fields could be more efficient and patient-centric to speed up discovery. David Fajgenbaum, MD will take you on his journey battling Castleman disease. When he nearly died for the first of five times and needed multiple rounds of multi-agent chemotherapy, he realized that …
Crafting a Career: Making a Fulfilling Professional Life with a Rare Disease
Finding the right job can be challenging, especially for those living with a rare disease. In this session, we explore what opportunities and accommodations are available for landing a fulfilling career. Hear from successful business professionals living with a rare disease and human resources experts on ways to navig…
Global Genes LIVE!: Ensuring Inclusivity through Organizational Leadership
Truly diverse research begins with your team. Hear from experts as they discuss the value of having leadership, boards and teams that reflect the patient population being served. They will share insights to help you build a roadmap for making your organization more centered around diversity and inclusion and intention…
