You are using an unsupported browser. Please update your browser to the latest version on or before July 31, 2020.
close

Showing articles from Young Adult tag

Understanding and Navigating Medicaid

**Introduction** **What is Medicaid?** Medicaid is a joint federal and state health insurance program that helps people with low incomes, people with disabilities, and people receiving Supplemental Security Income (SSI) pay for health care. It is the largest health insurer in the United States and provides health co…

Partnering with State and Federal Representatives

**Introduction** **What is Advocacy?** Anyone can be an advocate. Advocates are people who share their stories about how a system is affecting them personally and urge decision makers to take action. Your representatives in state government or in the U.S. Congress can vote to support legislation that expedites diagn…

Global Genes LIVE!: How to Become a Proactive Financial Advocate for Young Adults

Join our panelists as they discuss the determinants of financial well-being for young adults with rare diseases. Learn to identify patient and clinical financial literacy and education gaps, and explore financial advocacy and literacy resources available for all rare disease organizations wanting to educate their pati…

Financial Literacy and Navigation In Rare Disease

# **Introduction - Financial Literacy and Navigation in Rare Disease** Approximately one in 10 people living in the United States are affected by rare diseases. According to the 2020 National Economic Burden of Rare Disease study conducted by the Everylife Foundation for Rare Disease, families living with rare diseas…

Navigating Health Insurance

Thank you for including us on your journey! Most likely you have a need for this: Navigating Health Insurance because you or a loved one has a rare disease. As you prepare to use the tools in this kit, we want you to know that you are not alone. We are in this together. It is our hope that the personal stories, resour…

Financial Advocacy in RARE: Navigating the U.S. Health System for Young Adults

# **Introduction - Preparing for Transition** The transition to adulthood is a process and the experience of becoming an adult is different for everyone whether or not you have a rare disease. But if you have a rare disease, there are some extra challenges to think about, including navigating the healthcare system. W…

scroll to top icon