With exquisite detail and raw honesty, Susannah Cahalan reveals her personal journey from a promising young writer with a clean bill of health to a restrained hospital patient descending into madness. Employing her award- winning journalistic skill, Cahalan uncovers valuable insight into the human brain and incites im…
Rare disease advocacy communities and patients are reshaping care and support programs as well as research through innovation. Join leading patient advocates to learn the ins and outs of patient-driven innovation to change outcomes. Speakers: PJ Brooks, PhD, Kevan Chandler, Deborah Requesens PhD, & Luke Rosen
There is a lot of public debate surrounding the value of rare disease therapies. How do we ensure that the perspectives of patients, families, and advocates are included in these discussions and assessments? Advocates and economic experts will discuss new thoughts on the value of therapies and how advocates can get in…
Learn valuable information about thyroid eye disease and treatment options in this webinar. Designed for patients and their families, the panel of experts will empower you with knowledge and help you create a community of support and hope. [Download Slides][1] [1]: https://globalgenes.org/wp-content/uploads/2019/…
Starting a clinical trial is no simple task. From developing a protocol to patient recruitment to U.S. Food and Drug Administration (FDA) submission, there are a wide array of complex and closely monitored processes along the way. Patient and community involvement help ensure study questions are relevant and that the …