_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…
Hear firsthand from young adult rare disease patients who have gone through the transition from pediatric to adult care. They discuss approaches you can use for yourself or a patient you care for to help make the transition of care coordination from parent or guardian to child more smooth. They also help identify the …