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Showing articles from social support tag

2013 RARE Patient Advocacy Summit

Our 2nd Annual “RARE Patient Advocacy Summit_”_ was held on **Friday, September 20, 2013** at The Balboa Bay Club & Resort in Newport Beach, CA. **From Symptom to Cure: The Journey of a Rare Disease Advocate ~ Equipping Patients to Make a Difference** The Global Genes | RARE Project held a unique and interactive e…

RARE Patient Advocacy Summit

_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…

RARE Webinar: Transition of Care: Planning for Care for Children with a Rare Disease

![][1] As caregivers age, preparing for your loved one’s future can be daunting. It may be difficult for both you and the loved one in your care as you both transition into new roles and new chapters in your life. How do you plan for care for your adult child living with a rare disease–both physically and financially…

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