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Track 4: Bringing Back What Is Missing Enzyme Replacement Therapies for Rare Disease

11-Sep-2020

607

genetic testing sequencing gene therapy

Track 4: The Promise of Regenerative Medicine Cell Therapy and Tissue Engineering

11-Sep-2020

612

genetic testing sequencing gene therapy

Track 3: Understanding the Constraints on Clinical Trials Inclusion Criteria, Control Groups, Blind

11-Sep-2020

614

genetic testing sequencing gene therapy

Rare Therapies: A New Era for Genetic Medicines

22-Mar-2021

673

genetic testing sequencing gene therapy Cell and Gene Medicine

Welcome and Main Session: Rare Disease Updates from the Global Stage

03-Aug-2021

694

Diagnosis Transitions General Resources Insurance Caregiving social support mental health medical assistance gene therapy sequencing genetic testing Advocacy

Track 4: The Progress of Gene Therapy and Gene Editing

11-Sep-2020

734

genetic testing sequencing gene therapy

RARE Patient Advocacy Summit

_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…

11-Sep-2020

849

Diagnosis Transitions Registries Research General Resources Insurance Finances Events Caregiving Capacity Building Drug development social support mental health medical assistance gene therapy sequencing genetic testing Advocacy starting a nonprofit

Track 1: Beyond Diagnosis Working with a Genetic Counselor During Your Rare Journey

11-Sep-2020

1035

genetic testing sequencing gene therapy