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Showing articles from Caregiving tag

Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat

[Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/107307089 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

Update from the Community: Caregiver Survey

[Update from the Community: Caregiver Survey][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/295672628 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

NTM Lung Disease Webinar

Coughing, fatigue, or shortness of breath that won't go away? In partnership with INSMED, we dive into the deeper risk factors, diagnosis, and testing for rare lung diseases during this webinar. Learn from leading specialist Dr. Patrick Flume and patient and advocate Debbie B. about the management of this condition an…

Transition of Care Planning for Care for Children with a Rare Disease

[Transition of Care Planning for Care for Children with a Rare Disease][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/192711829 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

Welcome and Main Session: Rare Disease Updates from the Global Stage

[Welcome and Main Session: Rare Disease Updates from the Global Stage][1] from [Global Genes][2] on [Vimeo][3]. [1]: https://vimeo.com/295607711 [2]: https://vimeo.com/globalgenes [3]: https://vimeo.com

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