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Showing articles from Caregiving tag

Global Genes LIVE!: Engaging Diverse Voices at the Research Table

Hear experts in rare disease research discuss the current landscape of underserved community representation in research, common missteps in engaging with diverse communities, and disparities in access to care and research. Learn about considerations to keep top of mind when developing culturally competent outreach for…

NTM Lung Disease Webinar

Coughing, fatigue, or shortness of breath that won't go away? In partnership with INSMED, we dive into the deeper risk factors, diagnosis, and testing for rare lung diseases during this webinar. Learn from leading specialist Dr. Patrick Flume and patient and advocate Debbie B. about the management of this condition an…

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