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Showing articles from starting a nonprofit tag

Patients and Advocates as Entrepreneurs: New Models for Drug Development

Some rare disease patients and advocates have forged a path as entrepreneurs – funding or building companies to focus on rare disease research. Learn from business leaders and patients about what resources are needed, what the process involves, and how to decide if this option is for you. Speakers: Imran Babar, PhD, …

RARE Patient Advocacy Summit

_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…

Building a Foundation and Your Future

![][1] Most likely you have a need for this Building a Foundation and Your Future toolkit because you or a loved one has a rare disease. As you prepare to use the tools in this kit, we want you to know that you are not alone. We are in this together. It is our hope that the personal stories, resources, tips, and sugg…

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