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Showing articles from Research tag

Global Genes LIVE!: Proactive Planning for Continuity of Research During a Crisis

The impacts of COVID-19 greatly affected rare disease research, bringing many research studies to a halt. Join our panel as they help you understand how COVID-19 has impacted global rare disease research and how you can preserve research specimens and maintain data quality to shield ongoing studies from the impacts of…

Data, Data, Data: Sharing and Owning Data to Game Change Rare Disease Research

[Data, Data, Data: Sharing and Owning Data to Game Change Rare Disease Research][1] from [Global Genes][2]. [1]: https://www.youtube.com/watch?v=7Vfj3Q_wBLM [2]: https://www.youtube.com/channel/UC3kGR-FsXTEbtGj1Ljg4CxA

Technologies for Learning about Rare Disease from Patients and Caregivers

Improving clinical care, treatment, and therapies is only possible by collecting and sharing data. There are many ways to track symptoms and their progression, aggregating the information so that it is available to you and your communities. Using technology to track the severity of the symptoms may lead to better drug…

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