Data, Data, Data: Sharing and Owning Data to Game Change Rare Disease Research
[Data, Data, Data: Sharing and Owning Data to Game Change Rare Disease Research][1] from [Global Genes][2]. [1]: https://www.youtube.com/watch?v=7Vfj3Q_wBLM [2]: https://www.youtube.com/channel/UC3kGR-FsXTEbtGj1Ljg4CxA
Rare Disease Research: Getting Your Disease Noticed
When a disorder is rare, it can be difficult to identify a healthcare professional or researcher with experience in that particular diagnosis. In this session, listen to experts who have mastered the art of identifying ways to bring their cause to the forefront and learn how you can develop partnerships with academic …
