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Showing articles from Finances tag

Fundraising Ideas Anyone Can Try

Fundraising for research, support services and other resources can be challenging to organizations regardless of size. A panel of advocacy organization leaders will share the fundraising tactics that work for them as well as what they learned from efforts that failed to gain traction. Learn how to motivate and activat…

Global Genes LIVE!: Mitigating Familial Financial Toxicity Through Planning

Join us for this discussion to learn about patient financial literacy and resources to support shared decision making. Financial experts will also discuss issues and barriers related to financial well-being, patient outcomes and quality of life. Featuring Barby Ingle, Alan Richardson, and Christina Hartman.

RARE Patient Advocacy Summit

_**Please join us for our**_ 3rd Annual “RARE Patient Advocacy Summit_”_ held on **September 11-12, 2014** at the Hyatt Regency in Huntington Beach, California. _**Empowering Patient Advocates to Become Successful ****Activists**_ [Download Agenda][1][ (PDF) ][2][Download Speaker Bios][3] (PDF) Download PDF slides: [D…

RARE Webinar: Transition of Care: Planning for Care for Children with a Rare Disease

![][1] As caregivers age, preparing for your loved one’s future can be daunting. It may be difficult for both you and the loved one in your care as you both transition into new roles and new chapters in your life. How do you plan for care for your adult child living with a rare disease–both physically and financially…

Global Genes LIVE!: How to Become a Proactive Financial Advocate for Young Adults

Join our panelists as they discuss the determinants of financial well-being for young adults with rare diseases. Learn to identify patient and clinical financial literacy and education gaps, and explore financial advocacy and literacy resources available for all rare disease organizations wanting to educate their pati…

Finding your Fundraising Strategy

# **Under the Big Top!: Fundraising Overview** Like a world-class circus, successful fundraising includes a variety of talent, magic, and tightrope risk taking. And even if you are included in the estimated 12 percent of U.S. adults who have coulrophobia (a fear of clowns), you can still enjoy being the ringmaster in…

Rare Insight: Building a Stronger Financial Future

Thank you for including us in your story! This Global Genes RARE Insight offers practical steps, tips, suggestions, and resources for: Building a Stronger Financial Future. This Insight is one in a series we are creating in response to the need for more information about adjacent issues that affect the medical needs o…

Navigating Health Insurance

Thank you for including us on your journey! Most likely you have a need for this: Navigating Health Insurance because you or a loved one has a rare disease. As you prepare to use the tools in this kit, we want you to know that you are not alone. We are in this together. It is our hope that the personal stories, resour…

Financial Advocacy in Rare Diseases: Landscape Assessment

![][1]Financial distress is a multidimensional concept derived from health disparities research that refers to lack of access to material, social, and cultural resources that support the individual, household, and wider collective experience and negotiation of healthcare. Other similar terms that have gained traction…

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